Links

In this section, we provide some of the sites we have found useful: public health genetics sites, professional organizations, genetic data bases, support groups, educational resources, and policy.

Public Health Genetics

Centers for Disease Control,
Office of Genetics and Disease Prevention
Provides current information about the impact of human genetic research and the Human Genome Project on public health and disease prevention.
www.cdc.gov/genetics/

Public Health Genetics Unit (PHGU)
Sponsored by the United Kingdom National Health Service and endorsed by the University of Cambridge, provides news and information about advances in genetics and their impact on public health and the prevention of disease.
www.medinfo.cam.ac.uk/phgu/

Educational Resources

Genetics Education Center, University of Kansas Medical Center
Extensive genetics web sites with hundreds of related links. Subheadings include The Human Genome Project, Educational Resources, Networking, Lesson Plans, Genetic Conditions, Careers.
www.kumc.edu/gec/

Taubman Medical Library and HealthWeb, a cooperative effort of the health science libraries.
A genetic resource center which includes journals, databases, institutions and organizations, educational resources, consumer health and current awareness web sites.
www.healthweb.org/

National Institutes of Health
The Human Genome Project with many other related links.
www.nhgri.nih.gov

Department of Energy, Life Science Division
The Human Genome research and the DOE role in that research.
www.science.doe.gov/ober/lsd_top.html

Department of Energy, Human Genome Management Information System
"Everything you always wanted to know about The Human Genome Project".
www.ornl.gov/hgmis

National Coalition for Health Professional Education in Education
NCHPEG is an effort to provide an organized, systematic, and national approach to the provision of genetics education for all health care professionals.
www.nchpeg.org

The American Cancer Society
www.cancer.org

Databases

The Online Mendelian Inheritance in Man (OMIM)
A database of human genes and genetic disorders authored by Dr. Victor McKusick and Johns Hopkins University.
www.ncbi.nlm.nih.gov/Omim/

National Center for Biotechnology Information
A resource for molecular biology information.
www.ncbi.nlm.nih.gov

Ethical, Legal and Social Issues

Genetics Education Center, University of Kansas Medical Center
Information on the ethical, legal and social issues of the Human Genome Project.
www.kumc.edu/gec/prof/geneelsi.html.

University of Pennsylvania Center for Bioethics
Background information on current bioethical issues including cloning and genetic technologies.
http://www.ajobonline.com/

Department of Energy and the Shriver Center
A newsletter on scientific, ethics and public policy issues in genetics.
www.geneletter.org

National Reference Center for Bioethics Literature
A collection of books, articles, publications concerned with biomedical issues including the Human Genome Project and genetic testing.
www.georgetown.edu/research/nrcbl/nirehg.htm

Professional Organizations

American Society of Human Genetics
Provides a variety of career and educational resources for all professionals with an interest in human genetics.
www.faseb.org/genetics/ashg/ashgmenu.htm

American College of Medical Genetics
Provides educational and policy resources for medical and clinical geneticists.
www.acmg.net

American Board of Medical Genetics
The accrediting body for training in Medical Genetics and the certifying body for six clinical genetics subspecialties. Comprehensive diplomate database provided.
www.faseb.org/genetics/abmg/abmgmenu.htm

National Society of Genetic Counselors
The professional organization for genetic counselors. Provides career and educational resources.
www.nsgc.org/

American Board of Genetic Counseling
The accrediting body for training in Genetic Counseling and the certifying body for genetic counseling practitioners. Comprehensive diplomate database provided.
www.abgc.net

Support Groups

Genetics Education Center, University of Kansas Medical Center
A comprehensive list of support groups and information on genetic conditions.
www.kumc.edu/gec/support

Alliance of Genetic Support Groups, Inc.
An international organization whose members are local, regional, and national genetic support groups.
www.geneticalliance.org

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In you have any questions, please contact: geneticsed@umich.edu