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Project Summary

The Communities of Color & Genetics Policy Project (renewal project) was conducted by a consortium of three universities: University of Michigan, Michigan State University, and Tuskegee University. The renewal project developed a process for engaging communities of color of diverse socio-economic levels in dialogues relating to genome research and its resulting technology, and from these dialogues developed recommendations for laws, professional standards and institutional policies regarding the use and application of genome research and technology.

In the initial project, community participants represented some of the racial/ethnic diversity in Michigan, but the absolute numbers of these groups in communities were small, and the distinctiveness of their voices was often lost in the overall conversation. It is for this reason that the renewal project concentrates on communities of color. The renewal project is similar to the initial project but incorporated important changes to successfully engage people of color. Most importantly, 12 African American and Latino community-based organizations (CBOs) in Michigan and Alabama played a key role, and a dedicated Community Advisory Board with representation from the participating CBOs provided guidance and input to all project phases.

Advisory Sources

The Community Advisory Board worked with investigators and staff in the planning and implementation of all project phases. A National Advisory Board of national experts in genetics and people of color, law, medicine, and policy met annually and provided broad oversight of the project, evaluated its overall progress, and to ensured incorporation of the latest developments in the field. Members were also available for telephone and e-mail consultation during the entire period of the project.

Funding

The National Institutes of Health, National Human Genome Research Institute, Ethical, Legal and Social Implications Branch granted $1,200,000 to conduct this three-year project.

 

 

 

 

 

 

 



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 Last updated 02/22/02
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