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Genome
Horizons:
Public Deliberations and Policy Pathways
Conference Proceedings
Table of Contents
May 15-16,1998
Marrriott Hotel at Metro Center
Washington, DC
Stephen
M. Modell, MD, MS
Tahnee C. Hartman,
MPH
Proceedings
Editors
A Conference of the
Genome Technology &
Reproduction:
Values & Public Policy Project
Conference
organized by the University
of Michigan
in collaboration with
the Michigan State
University Center for Ethics and Humanities in the Life Sciences
with support from the Greenwall Foundation and
the National Human
Genome Research Institute -
Ethical, Legal, and Social Implications (ELSI) Branch
Conference Planning
and Implementation Team
Tahnee C. Hartman,
MPH, Conference Coordinator
Susan Morrel-Samuels, MPH, Chair of Conference Planning Committee
Diane M. Drago, Diversified Management Systems, Conference Consultant
| Saundra Bailey |
Anne Kelsey |
| Janet G.
Broos |
Aaron Kalinowski |
| Eugenia Carpenter,
MPP |
Stephen Modell,
MD, MS |
| Toby Citrin,
JD |
Rosemary
Quigley |
| Leonard Fleck,
PhD |
Lisa Siedel |
| James Hanschu |
Traci Williams |
| Cathryn Bock |
|
Table of Contents
All
sections of the conference proceedings are offered in two printable
formats: Adobe PDF files and HTML text. We recommend you download
the proceedings in PDF format because it maintains formatting. Page
numbers are indicated in parenthesis. If you do not have Adobe Acrobat
Reader you can download
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Complete
Conference Proceedings Printer
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(includes Table of Contents and cover)
Friday, May 15, 1998
Opening Remarks Printer
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Introduction to the Genome Horizons Conference, Toby Citrin,
JD
Keynote Addresss Printer
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"What Sort of Nation
Shall We Be?: Genetics, Reproduction and
Shared Values," Thomas Murray, PhD
Overview and Background
of the Project Printer
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Project
Overview, Toby Citrin, JD
Community Dialogues Phase, Leonard Fleck, PhD
Policy Phase, Edward Goldman, JD
Break-out Sessions Printer
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Session A. Privacy and Confidentiality
Lawrence Gostin, JD; Sonia Suter, JD
Session B. Access to Genetic Services
Dan Brock, PhD; Dean Smith, PhD
Session C. Reproductive Technologies
Richard King, MD, PhD; Elizabeth Petty, MD
Session D. Mini-dialogue
Leonard Webster,
PhD; Leonard Fleck, PhD
Saturday, May
16,1998
Keynote Address Printer
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"Dialogue:
A Solution to the Public Policy Disconnect?" Daniel Yankelovich
Panel Session Printer
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"Informing Genetic Policy: The Future of Public Participation,"
Linda Wertheimer, moderator
Luncheon Address Printer
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Georgia Dunston, PhD
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